TY - BOOK AU - Ouellette,Alicia TI - Bioethics and disability: toward a disability-conscious bioethics T2 - Cambridge disability law and policy series SN - 9780511978463 (ebook) AV - KF480 .O92 2011 U1 - 174/.957 22 PY - 2011/// CY - Cambridge PB - Cambridge University Press KW - People with disabilities KW - Legal status, laws, etc KW - United States KW - Discrimination against people with disabilities KW - Law and legislation KW - Moral and ethical aspects KW - Medical ethics N1 - Title from publisher's bibliographic system (viewed on 05 Oct 2015); The struggle: disability rights versus bioethics -- Clashing perspectives and a call for reconciliation -- Infancy -- Childhood -- The reproductive years -- The adult years -- The end of life -- Toward a disability-conscious bioethics N2 - Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases UR - https://doi.org/10.1017/CBO9780511978463 ER -