Bioethics and disability : toward a disability-conscious bioethics / Alicia Ouellette.
Material type: TextSeries: Cambridge disability law and policy seriesPublisher: Cambridge : Cambridge University Press, 2011Description: 1 online resource (xiv, 371 pages) : digital, PDF file(s)Content type:- text
- computer
- online resource
- 9780511978463 (ebook)
- Bioethics & Disability
- 174/.957 22
- KF480 .O92 2011
Title from publisher's bibliographic system (viewed on 05 Oct 2015).
The struggle: disability rights versus bioethics -- Clashing perspectives and a call for reconciliation -- Infancy -- Childhood -- The reproductive years -- The adult years -- The end of life -- Toward a disability-conscious bioethics.
Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases.
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