Quality of life measurement in neurodegenerative and related conditions / (Record no. 518778)
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| 000 -LEADER | |
|---|---|
| fixed length control field | 03630nam a22003858i 4500 |
| 001 - CONTROL NUMBER | |
| control field | CR9780511975363 |
| 003 - CONTROL NUMBER IDENTIFIER | |
| control field | UkCbUP |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20200124160244.0 |
| 006 - FIXED-LENGTH DATA ELEMENTS--ADDITIONAL MATERIAL CHARACTERISTICS--GENERAL INFORMATION | |
| fixed length control field | m|||||o||d|||||||| |
| 007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION | |
| fixed length control field | cr|||||||||||| |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION | |
| fixed length control field | 101011s2011||||enk o ||1 0|eng|d |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER | |
| International Standard Book Number | 9780511975363 (ebook) |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER | |
| Cancelled/invalid ISBN | 9780521829014 (hardback) |
| 040 ## - CATALOGING SOURCE | |
| Original cataloging agency | UkCbUP |
| Language of cataloging | eng |
| Description conventions | rda |
| Transcribing agency | UkCbUP |
| 050 00 - LIBRARY OF CONGRESS CALL NUMBER | |
| Classification number | RC365 |
| Item number | .Q35 2011 |
| 082 00 - DEWEY DECIMAL CLASSIFICATION NUMBER | |
| Classification number | 616.8/0471 |
| Edition number | 22 |
| 245 00 - TITLE STATEMENT | |
| Title | Quality of life measurement in neurodegenerative and related conditions / |
| Statement of responsibility, etc | edited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg. |
| 246 3# - VARYING FORM OF TITLE | |
| Title proper/short title | Quality of Life Measurement in Neurodegenerative & Related Conditions |
| 264 #1 - Production, Publication, Distribution, Manufacture, and Copyright Notice (R) | |
| Place of production, publication, distribution, manufacture (R) | Cambridge : |
| Name of producer, publisher, distributor, manufacturer (R) | Cambridge University Press, |
| Date of production, publication, distribution, manufacture, or copyright notice | 2011. |
| 300 ## - PHYSICAL DESCRIPTION | |
| Extent | 1 online resource (xii, 194 pages) : |
| Other physical details | digital, PDF file(s). |
| 336 ## - Content Type (R) | |
| Content type term (R) | text |
| Content type code (R) | txt |
| Source (NR) | rdacontent |
| 337 ## - Media Type (R) | |
| Media type term (R) | computer |
| Media type code (R) | c |
| Source (NR) | rdamedia |
| 338 ## - Carrier Type (R) | |
| Carrier type term (R) | online resource |
| Carrier type code (R) | cr |
| Source (NR) | rdacarrier |
| 500 ## - GENERAL NOTE | |
| General note | Title from publisher's bibliographic system (viewed on 05 Oct 2015). |
| 505 0# - FORMATTED CONTENTS NOTE | |
| Formatted contents note | Aspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders. |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc | Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name as entry element | Nervous system |
| General subdivision | Degeneration |
| -- | Patients |
| -- | Rehabilitation. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name as entry element | Outcome assessment (Medical care) |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name as entry element | Quality of life |
| General subdivision | Measurement. |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Jenkinson, Crispin, |
| Dates associated with a name | 1962- |
| Relator term | editor. |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Peters, Michele, |
| Titles and other words associated with a name | Ph.D, |
| Relator term | editor. |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Bromberg, M. B. |
| Fuller form of name | (Mark B.), |
| Relator term | editor. |
| 776 08 - ADDITIONAL PHYSICAL FORM ENTRY | |
| Display text | Print version: |
| International Standard Book Number | 9780521829014 |
| 856 40 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://doi.org/10.1017/CBO9780511975363">https://doi.org/10.1017/CBO9780511975363</a> |
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