TY  - BOOK
AU  - Jenkinson,Crispin
AU  - Peters,Michele
AU  - Bromberg,M.B.
TI  - Quality of life measurement in neurodegenerative and related conditions
SN  - 9780511975363 (ebook)
AV  - RC365 .Q35 2011
U1  - 616.8/0471 22
PY  - 2011///
CY  - Cambridge
PB  - Cambridge University Press
KW  - Nervous system
KW  - Degeneration
KW  - Patients
KW  - Rehabilitation
KW  - Outcome assessment (Medical care)
KW  - Quality of life
KW  - Measurement
N1  - Title from publisher's bibliographic system (viewed on 05 Oct 2015); Aspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders
N2  - Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology
UR  - https://doi.org/10.1017/CBO9780511975363
ER  -