000			02772nam a22003978i 4500
001			CR9781139107969
003			UkCbUP
005			20200124160234.0
006			m|||||o||d||||||||
007			cr||||||||||||
008			110712s2012||||enk o ||1 0|eng|d
020			_a9781139107969 (ebook)
020			_z9781107020870 (hardback)
020			_z9781107696631 (paperback)
040			_aUkCbUP _beng _erda _cUkCbUP
050	0	0	_aK3611.R43 _bL69 2012
082	0	0	_a610.285/58 _223
100	1		_aLowrance, William W., _d1943- _eauthor.
245	1	0	_aPrivacy, confidentiality, and health research / _cWilliam W. Lowrance.
246	3		_aPrivacy, Confidentiality, & Health Research
264		1	_aCambridge : _bCambridge University Press, _c2012.
300			_a1 online resource (xiv, 188 pages) : _bdigital, PDF file(s).
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
490	1		_aCambridge bioethics and law ; _v20
500			_aTitle from publisher's bibliographic system (viewed on 05 Oct 2015).
505	0		_aIntroduction -- Data, biospecimens, and research -- Privacy, confidentiality, safeguards -- Broad privacy and the data protection regimes -- Healthcare, public health, and research regimes -- Consent -- Identifiability and person-specific data -- Genetics and genomics -- Safeguards and responsibilities -- Data sharing, access, and transfer -- Ways forward.
520			_aThe potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.
650		0	_aMedical records _xLaw and legislation.
650		0	_aData protection _xLaw and legislation.
650		0	_aMedicine _xResearch _xLaw and legislation.
776	0	8	_iPrint version: _z9781107020870
830		0	_aCambridge bioethics and law ; _v20.
856	4	0	_uhttps://doi.org/10.1017/CBO9781139107969
999			_c517949 _d517947