000			03630nam a22003858i 4500
001			CR9780511975363
003			UkCbUP
005			20200124160244.0
006			m|||||o||d||||||||
007			cr||||||||||||
008			101011s2011||||enk o ||1 0|eng|d
020			_a9780511975363 (ebook)
020			_z9780521829014 (hardback)
040			_aUkCbUP _beng _erda _cUkCbUP
050	0	0	_aRC365 _b.Q35 2011
082	0	0	_a616.8/0471 _222
245	0	0	_aQuality of life measurement in neurodegenerative and related conditions / _cedited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg.
246	3		_aQuality of Life Measurement in Neurodegenerative & Related Conditions
264		1	_aCambridge : _bCambridge University Press, _c2011.
300			_a1 online resource (xii, 194 pages) : _bdigital, PDF file(s).
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
500			_aTitle from publisher's bibliographic system (viewed on 05 Oct 2015).
505	0		_aAspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders.
520			_aPatient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology.
650		0	_aNervous system _xDegeneration _xPatients _xRehabilitation.
650		0	_aOutcome assessment (Medical care)
650		0	_aQuality of life _xMeasurement.
700	1		_aJenkinson, Crispin, _d1962- _eeditor.
700	1		_aPeters, Michele, _cPh.D, _eeditor.
700	1		_aBromberg, M. B. _q(Mark B.), _eeditor.
776	0	8	_iPrint version: _z9780521829014
856	4	0	_uhttps://doi.org/10.1017/CBO9780511975363
999			_c518778 _d518776